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Discover Russ Newton ALS Ride of a Lifetime
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Russ Newton
Mar 30, 20201 min read
Supplies delivered!
OK, this will be a disappointing post I am sure for most, but I had the TP fairy stop by today with four rolls of rare Toilet Paper! An...
47 views0 comments
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Russ Newton
Mar 27, 20201 min read
You know the shelter in place is getting to you when....
...you cut your own hair! Let me know how I did!
68 views0 comments
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Russ Newton
Mar 27, 20201 min read
A look back at Terlingua.
Bryan and Rhonda Baker, a nice couple we met in Terlingua on the last day we were there. They stayed in the room next door to us and...
53 views0 comments
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Russ Newton
Mar 23, 20201 min read
All done with first round and other updates.
Today was the 14th treatment and for removal of the IV. Here is a pic of the IV in place in the port on my chest. And here is one with...
47 views0 comments
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Russ Newton
Mar 22, 20202 min read
Freedom, at last!
I have now been trained how to administer the infusion treatment by myself and while I have been doing it for the past week with a nurse...
48 views0 comments
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Russ Newton
Mar 19, 20201 min read
Quarantine in place, bah, humbug!
After ten days at home, I am officially tired of it! At least, right now I am. Yesterday I was so stir crazy I took the car and went on a...
49 views1 comment
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Russ Newton
Mar 16, 20201 min read
Port installed today!
A port to infuse medicine into my body was installed today, it will make the application much better as I will run out of veins sooner or...
59 views3 comments
Russ Newton
Mar 15, 20201 min read
Brief interim medical update.
A quick note to say to the 15 loyal readers that I am through five sessions now of the Radicava and happy to say no side effects yet! The...
60 views0 comments
Russ Newton
Mar 11, 20202 min read
Medical update
I started the home infusion of Radicava, a new ALS medicine that as it was explained to me, removes free radicals from the body. And that...
82 views0 comments
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Russ Newton
Mar 11, 20203 min read
Big Bend National Park.
Sorry for the week off, longer than I thought I would be. Spent four days at Big Bend National park and I must say an amazing experience....
67 views2 comments
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Russ Newton
Mar 4, 20201 min read
Brief health update.
One more post. I met with a nurse yesterday from the company that supplies the Radicava drug for ALS treatment. This is the drug that...
83 views1 comment
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Russ Newton
Mar 4, 20201 min read
Big Bend National Park
Starting this Friday, my best friend in life Jim Pagel and I will be traveling to Big Bend National Park in West Texas. My first time...
43 views0 comments
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Russ Newton
Mar 3, 20201 min read
Chris Avetisian visits.
A good old friend from Los Angeles Times made the trek out to San Antonio. My good friend Chris Avetisian. We worked together for 15...
82 views1 comment
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Russ Newton
Mar 2, 20201 min read
Second trip to the Keys
A dear old friend, Matt Miller invited me to join him and his family for a few days in the Keys. I met Matt in 1982, when I was a new...
44 views0 comments
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