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Discover Russ Newton ALS Ride of a Lifetime
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Russ Newton
Mar 30, 20201 min read
Supplies delivered!
OK, this will be a disappointing post I am sure for most, but I had the TP fairy stop by today with four rolls of rare Toilet Paper! An...
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Russ Newton
Mar 27, 20201 min read
You know the shelter in place is getting to you when....
...you cut your own hair! Let me know how I did!
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Russ Newton
Mar 27, 20201 min read
A look back at Terlingua.
Bryan and Rhonda Baker, a nice couple we met in Terlingua on the last day we were there. They stayed in the room next door to us and...
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Russ Newton
Mar 23, 20201 min read
All done with first round and other updates.
Today was the 14th treatment and for removal of the IV. Here is a pic of the IV in place in the port on my chest. And here is one with...
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Russ Newton
Mar 22, 20202 min read
Freedom, at last!
I have now been trained how to administer the infusion treatment by myself and while I have been doing it for the past week with a nurse...
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Russ Newton
Mar 19, 20201 min read
Quarantine in place, bah, humbug!
After ten days at home, I am officially tired of it! At least, right now I am. Yesterday I was so stir crazy I took the car and went on a...
49 views1 comment
Russ Newton
Mar 16, 20201 min read
Port installed today!
A port to infuse medicine into my body was installed today, it will make the application much better as I will run out of veins sooner or...
59 views3 comments
Russ Newton
Mar 15, 20201 min read
Brief interim medical update.
A quick note to say to the 15 loyal readers that I am through five sessions now of the Radicava and happy to say no side effects yet! The...
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Russ Newton
Mar 11, 20202 min read
Medical update
I started the home infusion of Radicava, a new ALS medicine that as it was explained to me, removes free radicals from the body. And that...
82 views0 comments
Russ Newton
Mar 11, 20203 min read
Big Bend National Park.
Sorry for the week off, longer than I thought I would be. Spent four days at Big Bend National park and I must say an amazing experience....
67 views2 comments
Russ Newton
Mar 4, 20201 min read
Brief health update.
One more post. I met with a nurse yesterday from the company that supplies the Radicava drug for ALS treatment. This is the drug that...
83 views1 comment
Russ Newton
Mar 4, 20201 min read
Big Bend National Park
Starting this Friday, my best friend in life Jim Pagel and I will be traveling to Big Bend National Park in West Texas. My first time...
43 views0 comments
Russ Newton
Mar 3, 20201 min read
Chris Avetisian visits.
A good old friend from Los Angeles Times made the trek out to San Antonio. My good friend Chris Avetisian. We worked together for 15...
82 views1 comment
Russ Newton
Mar 2, 20201 min read
Second trip to the Keys
A dear old friend, Matt Miller invited me to join him and his family for a few days in the Keys. I met Matt in 1982, when I was a new...
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