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Discover Russ Newton ALS Ride of a Lifetime
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Russ Newton
Dec 26, 20211 min read
Last update for a few days.
First, hydration works! No episode last night, what a relief. Now I just have to keep putting fluids in the engine to keep it running...
129 views10 comments
Russ Newton
Dec 25, 20211 min read
Update.
So I hydrated like heck today. I took in two bottles of Pedialyte, 33.8 ounces each and 6 355ml of Jevity liquid protein and follow up...
94 views1 comment
Russ Newton
Dec 25, 20211 min read
Correction. I am a dumb ass.
Well I went back to sleep and I woke up at 7am coughing and not able to breathe. And like the last time, it happen twice. But this time I...
144 views1 comment
Russ Newton
Dec 25, 20211 min read
Sorry to start Christmas with breathing news.
But I woke up at 3:53am today and started coughing really bad which is now how I trigger an episode of not breathing. I sat up, then walk...
127 views1 comment
Russ Newton
Dec 23, 20211 min read
Blown Away.
By Nina Lee's package to me today. I opened it up and there were two smaller boxes in there. One said open right away, contains a...
241 views7 comments
Russ Newton
Dec 22, 20212 min read
Adventures with solid food. (blended down so I can ingest via my peg tube)
Stuffed shells tonight. And not made as suggested by this photo. I made mine in a stove top pan. Added some sausage flavored pasta sauce...
92 views3 comments
Russ Newton
Dec 21, 20211 min read
The drooling has stopped!
At around noon today I took the rag out of my mouth for the first time in 9 days. And I have had it out for an hour and half. So five...
144 views14 comments
Russ Newton
Dec 18, 20211 min read
A family picture.
Left to right. Bill and his wife Jane Cruckson. Robert and Dolores Newton. Fred and Vivian Cruckson. And the Patriarch of the family,...
93 views0 comments
Russ Newton
Dec 17, 20212 min read
ACT for ALS Passes in the Senate! December 16, 2021
Tonight infused us with hope and inspiration. Tonight, ACT for ALS passed in the Senate because tens of thousands of you took action...
113 views1 comment
Russ Newton
Dec 17, 20211 min read
Best Beef Ribs!
This is the smaller of the two racks of ribs I got today from 2M. And they blew me away again. They gave me a free rack of ribs, again....
90 views0 comments
Russ Newton
Dec 16, 20211 min read
Delayed Gratification
The good news? I did get my Botox treatment today. The not so good news? Rags will be part of my future for a week. That is how long it...
100 views2 comments
Russ Newton
Dec 15, 20211 min read
Oreo's and Milk. Just because sometimes.
So this post is for anyone with ALS that has lost the ability to eat by mouth. Sometimes, when I am a little low about not being able to...
123 views2 comments
Russ Newton
Dec 14, 20212 min read
Scratch that, good news!
I saw my ALS doctor in San Antonio today. And I was apparently able to impress on her and her associate how badly I needed relief from...
173 views9 comments
Russ Newton
Dec 13, 20211 min read
A Couple of refugees from Wisconsin!
Met Jim and Jeane Sniff today at the infamous Friendly Spot outdoor bar. Had a good time chatting with them both. Visit for about an hour...
119 views1 comment
Russ Newton
Dec 12, 20211 min read
More than you want to know about Rags!
So when you have ALS you think a lot about your mortality. And when you have colored rags in your mouth for 24 hours a day you start to...
111 views0 comments
Russ Newton
Dec 11, 20211 min read
Going Crazy.
I am getting close to losing it. I have to have a rag in my mouth 24 hours a day now. I can not control the drooling any other way. And I...
135 views4 comments
Russ Newton
Dec 9, 20212 min read
How I eat.
This is what I need to eat. A glass, a 150ml syringe, a tube to access the "peg" I have implanted in my lower chest and the actual food I...
103 views2 comments
Russ Newton
Dec 8, 20212 min read
Update on Hermiting
I missed the opportunity to explain this in my last post. So here it is now. This is just one of the many reasons I have hermited up. I...
141 views4 comments
Russ Newton
Dec 7, 20211 min read
Guest Post Chip Crozier
Russ, you are to be commended and are truly an inspiration in every sense of the word. I have never known anyone else who has tried so...
108 views4 comments
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