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Discover Russ Newton ALS Ride of a Lifetime
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Russ Newton
Dec 6, 20211 min read
Solution for sleep!
I happened on a solution for a problem I have been having. Because I drool so badly it can be difficult to fall asleep. Last night I hit...
103 views0 comments
Russ Newton
Dec 5, 20212 min read
Guest Post
Merry Christmas, Happy Hanukah .. Happy holidays to everyone!! Russ said something to me the other day that stung a bit. He suggested...
189 views1 comment
Russ Newton
Dec 4, 20211 min read
Old Friends
Heard from an old friend today that found the blog on his own. He retired nine years ago, that is why I didn't have his contact info. His...
118 views0 comments
Russ Newton
Dec 4, 20211 min read
We made it to San Antonio!
Pulled in at 11:30pm Friday. An hour in and we have everything in from the car and most it in the right place. That is all for now, tired...
118 views4 comments
Russ Newton
Dec 2, 20211 min read
Roadtrip!
Road trip! Starts today. Last road trip I will take I fear but hope is always there and maybe I will. Logic looms and defeats hope...
109 views2 comments
Russ Newton
Nov 27, 20212 min read
A rare visitor.
Jim Creeron stopped yesterday and we had a nice chat. I knew Jim from Frank Allis Elementary school where we first met. We hung out a bit...
125 views10 comments
Russ Newton
Nov 26, 20211 min read
Thanksgiving
Jim Pagel and his wife invited me over to their house for Thanksgiving. I had a great time due in part to their understanding of my...
170 views7 comments
Russ Newton
Nov 25, 20211 min read
Good News/Bad News
The good news? I was scheduled for my Botox procedure. The bad news? Not until January 8th, 2022. So I will have to deal with drooling a...
119 views2 comments
Russ Newton
Nov 22, 20211 min read
Update on my rough night
So I have been waiting to get schedule for a procedure to resolve my excess drooling. I think that is cause of the most recent attacks....
122 views4 comments
Russ Newton
Nov 21, 20211 min read
Rough time last night.
Well I had a good day until the end of it. About 11:30am I was getting ready to go to bed and I had to cough. I coughed. Then that...
114 views0 comments
Russ Newton
Nov 20, 20213 min read
Cravings.
It should be no surprise that I find myself craving food almost 100% of the time. The worst is when I am watching TV. 2/3s of all...
120 views0 comments
Russ Newton
Nov 20, 20211 min read
Drooling Solution?
Note, I was told I should hear something in a week. I messaged back that was not acceptable to me, I was having significant issues with...
106 views1 comment
Russ Newton
Nov 15, 20211 min read
Woke up at 1am again with excess Saliva and not able to breath.
I woke up slowly as I had a ridiculous amount of saliva in my mouth. Then I started to cough. This was the same pattern the last time...
114 views0 comments
Russ Newton
Nov 11, 20212 min read
Latest update on my health.
So I hate to tell you all this but I am in the last innings of my life. The last full assessment at my doctors office noted weakness on...
365 views30 comments
Russ Newton
Nov 10, 20211 min read
Ashish K. Jha, MD, MPH
There is a viral disease Where most infections are mild, asymptomatic With a very low fatality rate And large age gradient: kids are even...
119 views0 comments
Russ Newton
Nov 7, 20211 min read
Update on sleeping
Well it is early to claim victory over the most recent bout of not breathing but I did make it through last night without a reoccurrence...
166 views3 comments
Russ Newton
Nov 6, 20211 min read
Well that sucks. Updated.
I woke up today at 3am today unable to breathe. I had a horrible coughing fit and then I was gasping for air. This time it lasted about...
162 views3 comments
Russ Newton
Nov 3, 20211 min read
Update on frustration with not being able to speak. A solution presents itself.
So I have written on this blog several times my frustration over not being able to speak. I receive a reply from one of the nine people I...
167 views4 comments
Russ Newton
Nov 1, 20211 min read
Two year anniversary of my diagnoses of Bulbar Onset ALS.
A date I didn't think I would make. On the day I was diagnosed, I had 22 months to live according to the National Library of Medicine....
660 views2 comments
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