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Discover Russ Newton ALS Ride of a Lifetime
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Russ Newton
Dec 21, 20201 min read
Dreams
Well ALS has really got its hooks into me now. Last night I had a dream about it. My dream started with me in bed with my ex-wife Sue. I...
116 views
2 comments


Russ Newton
Dec 19, 20201 min read
What is death?
As you might imagine it, I have had the opportunity to think hard about this subject since I was diagnosed with a 100% fatal illness....
159 views
3 comments


Russ Newton
Dec 17, 20201 min read
Sorry for getting a little political here, but this was too good to not re-post.
"I don't need the vaccine," they said while enjoying life without polio, tetanus, hepatitis A, hepatitis B, rubella, measles, whooping...
76 views
1 comment


Russ Newton
Dec 16, 20204 min read
Follow up on Life Lesson Number 5.
So promised in this earlier post I would finish the story later. Not one of my proudest moments either I am ashamed to say. I have...
113 views
2 comments


Russ Newton
Dec 15, 20202 min read
More on Oly.
I think enough time has passed and the raw feelings I had over her untimely passing have faded enough to talk about some of the good...
142 views
4 comments


Russ Newton
Dec 14, 20201 min read
Here is a picture of my feeding tube.
I hope you can appreciate why I desire a button access vs. this dangling 16 inches of tube hanging out of my body. And please note, I am...
124 views
2 comments


Russ Newton
Dec 10, 20201 min read
Good News! (and some bad news)
The good news is I made an 856 mile trip by car from just outside of Nashville, Tennessee to my home in San Antonio. Did it in one shot,...
134 views
1 comment


Russ Newton
Dec 7, 20201 min read
Change in plans
So I told you all that we were heading for Brownsville, TX. But we decided to skip it and ended up in Galveston, TX. On the water, at a...
111 views
3 comments


Russ Newton
Dec 6, 20201 min read
Big Bend National Park, Again.
Made my way back to Big Bend with my son this time. Still an amazing place. If you have not been, put it on your bucket list please. It...
84 views
2 comments


Russ Newton
Dec 3, 20201 min read
Random thought I recalled sharing on this blog but looking back I didn't.
So here it is. Getting the stomach tube was described to me a "minor surgery" Indeed, it was an out patient (meaning I drove to the...
92 views
1 comment


Russ Newton
Dec 3, 20201 min read
My son Matthew Newton will be....
visiting me this Friday. My last hurrah with him will be an epic road trip (following Covid restrictions of course). Our first stop will...
138 views
4 comments


Russ Newton
Nov 22, 20201 min read
Update
A quick update for the loyal readers. I have not nor will be posting much for the next holiday week. But I want you all to know I am...
158 views
2 comments


Russ Newton
Nov 14, 202011 min read
Update on my mental state.
I posted below my writing part of an article from US National Library of Medicine. I underlined the parts that were relevant to me. I...
156 views
4 comments

Russ Newton
Nov 12, 20201 min read
Stomach Tube in.
Well, I must say, I have had more fun days than today. I have my stomach tube placed now and man does it hurt! I just popped 800mgs of...
102 views
2 comments

Russ Newton
Nov 6, 20201 min read
Stomach Tube, ugh.
So I met with the Gastroenterologist and this is the plan. Next Tuesday, the 10th, I have to take a drive through Covid test. Then on...
71 views
2 comments


Russ Newton
Nov 4, 20202 min read
Dead man Talking (Updated 1/14/2021)
Hi, Russ Newton here. I was diagnosed with Bulbar onset ALS on November 1st, 2019. I retired that day and am sitting here on November...
188 views
4 comments


Russ Newton
Nov 4, 20202 min read
Venting Post
The DMV experience in Texas is usually so different than California. When I was in my last month in California, I had to get a driving...
64 views
2 comments


Russ Newton
Nov 3, 20203 min read
More Gene Bell.From a story that appeared in the San Diego Union Tribune during my brief time there.
U-T president got leg up from predecessor By Logan Jenkins Jul 14, 2015 at 2:03 PM Russ Newton. After an evening community meeting in...
98 views
2 comments

Russ Newton
Nov 3, 20202 min read
Anniversary!
I was diagnosed on 11/01/19 so I am one year into my ALS journey. At this point I have no physical symptoms, muscle loss, loss of...
75 views
4 comments


Russ Newton
Oct 31, 20201 min read
Second day of travel.
So because I detoured to see Gene Bell, I had set myself up for a longer drive than I planned. So I stopped that night at hotel 40 miles...
52 views
1 comment
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