Discover Russ Newton ALS Ride of a Lifetime

Bryan and Rhonda Baker, a nice couple we met in Terlingua on the last day we were there. They stayed in the room next door to us and...

Today was the 14th treatment and for removal of the IV. Here is a pic of the IV in place in the port on my chest. And here is one with...

I have now been trained how to administer the infusion treatment by myself and while I have been doing it for the past week with a nurse...

After ten days at home, I am officially tired of it! At least, right now I am. Yesterday I was so stir crazy I took the car and went on a...

A port to infuse medicine into my body was installed today, it will make the application much better as I will run out of veins sooner or...

A quick note to say to the 15 loyal readers that I am through five sessions now of the Radicava and happy to say no side effects yet! The...

I started the home infusion of Radicava, a new ALS medicine that as it was explained to me, removes free radicals from the body. And that...

Sorry for the week off, longer than I thought I would be. Spent four days at Big Bend National park and I must say an amazing experience....

One more post. I met with a nurse yesterday from the company that supplies the Radicava drug for ALS treatment. This is the drug that...

Starting this Friday, my best friend in life Jim Pagel and I will be traveling to Big Bend National Park in West Texas. My first time...

A good old friend from Los Angeles Times made the trek out to San Antonio. My good friend Chris Avetisian. We worked together for 15...

A dear old friend, Matt Miller invited me to join him and his family for a few days in the Keys. I met Matt in 1982, when I was a new...

So one of the first side effects of Bulbar onset ALS is the gradual loss of speaking ability. No one can tell me how long it will take,...

Good news, a new drug I started taking designed to reduce saliva flow is really working wonders for my speech. I had doubts about taking...

My son is an interesting cat. He was identified as gifted academically when he was six years old. He proved that out through his sixth...

I was fortunate enough to get an invite to the ZZ Top concert at the San Antonio Rodeo last night. Here is the famous La Grange for your...

Some of my favorite shots of her over her life. Good dog! Here she is after going after a small animal in a thick set of sharp branches....

So, yesterday I finally made it to the ALS doctor here in San Antonio. My appointment was at 10am, it ended at 5:30pm! My first...

I am not one who has a lot of emotional feelings. Due to my abusive relationship with my father, I learned not to react with emotion as...

After riding 1,400 miles in 3 days to make it back home, I'm taking a few moments to sit down and reflect on the this incredible...