Discover Russ Newton ALS Ride of a Lifetime

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Russ Newton

Feb 21, 20222 min read

Bad Fall last night. Update.

Went the emergency room tonight. Fell down getting into the uber but not because of ALS but because it is icy out. ALS stopped me from...

187 views5 comments

Russ Newton

Feb 19, 20222 min read

Cribbage.

I realize the posts have been a little dreary lately. So time for fun! One good thing about coming back to where I was born and...

152 views8 comments

Russ Newton

Feb 19, 20221 min read

Again.

I laid down to go to sleep tonight at 11:45pm. I did everything like I have been doing it for the past 19 days. No deviation. And I was...

179 views6 comments

Russ Newton

Feb 17, 20223 min read

Follow up failure by a resource to 'help' ALS Patients.

Hi Russ, I’ve been reviewing the eligibility criteria for all the interventional ALS trials currently enrolling in Wisconsin and Texas...

145 views0 comments

Getting close to the end but there is a faint hope.

Russ Newton

Feb 13, 20222 min read

Getting close to the end but there is a faint hope.

I am coming to the end of what I can deal with with ALS. First up, can't speak. And can't eat. And have to suck fluid from my lungs every...

284 views13 comments

Russ Newton

Feb 12, 20221 min read

Pre Wake Party.

At my house last night. I was cooking most of the night and several of my friends tried to get me involved in the animated discussions...

306 views4 comments

Russ Newton

Feb 10, 20222 min read

What ALS patients have to put up with.

Here is a great example of what I have discovered about ALS. Once you get past a certain point in the illness, you get basically told you...

190 views9 comments

Russ Newton

Feb 9, 20222 min read

Solution?

I don't think so. Though I had a very good meeting with the Pulmonologist. He is going to reach out to the company that provided the...

118 views2 comments

Russ Newton

Feb 9, 20221 min read

Next Stage

I will start by stating the human mind is incredible. Right now I am impressed with how I have transitioned from thinking I would kill...

167 views2 comments

Early Lesson in Management From Joe Cantrell.

Russ Newton

Feb 6, 20221 min read

Early Lesson in Management From Joe Cantrell.

I was the pressroom manager at the Daily Press from 1987 to 1994. Early in my time there I learned an important lesson from Joe, the...

150 views0 comments

Caught up with a friend, from work a long time ago!

Russ Newton

Feb 5, 20221 min read

Caught up with a friend, from work a long time ago!

Sue Peters was working in Finance as a planner I believe when I was the pressroom manager at the Daily Press. She was a good friend to me...

136 views0 comments

Results from my visit to the doctor today.

Russ Newton

Feb 4, 20221 min read

Results from my visit to the doctor today.

Well that was different. I didn't get strength tested and I didn't get my gait observed but I did get an answer to a question that was...

213 views0 comments

Department of Justice Response to My complaint.

Russ Newton

Feb 3, 20221 min read

Department of Justice Response to My complaint.

Dear Russell Newton, You contacted the Department of Justice on January 11, 2022. After careful review of what you submitted, we have...

190 views2 comments

Russ Newton

Feb 1, 20222 min read

Guest Post - Jeff Johnson

So I was an analyst in the pressroom of the Chicago Tribune in 1986 (imagine the business was so strong we had a full time analyst...

242 views5 comments

Updated. Todays State of Mind. An apology.

Russ Newton

Feb 1, 20222 min read

Updated. Todays State of Mind. An apology.

So I enter my third day of battle with ALS fluid in the throat. And I happy to report I woke up at 4:10am today due to hydrologic...

177 views7 comments

Russ Newton

Jan 31, 20222 min read

My current state of mind.

I will describe to you what the process of dying from ALS feels like from my perspective. It is a strange way to die for sure. I feel...

272 views12 comments

Russ Newton

Jan 30, 20221 min read

A different kind of post

I noticed a charge on my Amex account for over $400 to Air BNB. I get notified when ever there is a charge made without the card present....

140 views2 comments

Russ Newton

Jan 29, 20221 min read

Different outcome last night.

I went to sleep at about 11pm. I woke up at 3am and started to cough and I felt like I did the night before, I was about to stop...

151 views9 comments

Russ Newton

Jan 28, 20221 min read

Can't Breathe! Again.

Woke up at 5am this am and didn't feel right. Not sure how to describe it other than not feeling right. I was slightly congested so that...

131 views9 comments

Russ Newton

Jan 27, 20225 min read

A friend and how we became friends.

This will be a long story I am afraid but I feel motivated to tell it tonight so bear with me. I am going to tell you all about a friend...

205 views6 comments

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