Discover Russ Newton ALS Ride of a Lifetime

It should be no surprise that I find myself craving food almost 100% of the time. The worst is when I am watching TV. 2/3s of all...

Note, I was told I should hear something in a week. I messaged back that was not acceptable to me, I was having significant issues with...

I woke up slowly as I had a ridiculous amount of saliva in my mouth. Then I started to cough. This was the same pattern the last time...

So I hate to tell you all this but I am in the last innings of my life. The last full assessment at my doctors office noted weakness on...

There is a viral disease Where most infections are mild, asymptomatic With a very low fatality rate And large age gradient: kids are even...

Well it is early to claim victory over the most recent bout of not breathing but I did make it through last night without a reoccurrence...

I woke up today at 3am today unable to breathe. I had a horrible coughing fit and then I was gasping for air. This time it lasted about...

So I have written on this blog several times my frustration over not being able to speak. I receive a reply from one of the nine people I...

A date I didn't think I would make. On the day I was diagnosed, I had 22 months to live according to the National Library of Medicine....

I had been applying for many clinical trials for ALS treatments. I have shared with you all the various cold hearted rejections I have...

I actually have a memory of this. From when I was less than a year old. I remember pulling these plants off and down on the floor. I...

people think because i can't talk, i don't have the mental ability to communicate at all. They think i have some kind of mental...

I met Zach Johnson very early in his life. I recall we babysat for him when he was a year or so old in Orlando, Florida. Zach is the...

The rocking chair on the front of this post was my Great Grandmother on my mothers side of the family. Mary was her name and she had this...

I sold the 1998 Honda Valkyrie to Jim awhile back for a $1. But I kept it in my garage at my house with the thought I could still ride...

Not a big shock to me and I had already decided to not go to John Hopkins. The simple fact is that the best out come I could hope for is...

Starts at 7:30am. That is when I wake up most days. I then go across the hall and look at the emails that came in over night. Then I go...

I installed a NEST thermostat at my home in Wisconsin when I returned here in May. It seemed fairly simple to me and I had no issues with...

I have not had my teeth cleaned or been to a dentist in over two years. I had an appointment in March of 2020, a six month follow up that...

By Ariana Eunjung Cha May 26, 2017 A few decades ago, doctor-assisted suicide was considered a fringe idea despite surveys showing many...