So I started physical therapy in my home about ten days before i went to Texas for a month. I started this because the nurse that access's my port mentioned they offered in home PT. So I said sure, I would try it. A nurse would stop by and take me through about a 45 minute session of PT. I wondered why but I didn't ask anything about it. They came four or five times. They "trained" me so I could do it every day while I was in Texas. I thought I was done with in home visits to assist me with PT. Then fast forward to about a week ago. The supervisor scheduled a meeting with me to access my needs for an in home nurse to continue to visit me. During the conversation I asked the following question. "Isn't ALS a progressive and unrelenting disease? What good does PT do with ALS? Does it reverse any effect? I wouldn't think so." She replied I didn't have to do PT if I didn't want to. I said I would be happy to do it I just wanted to know if it would do any good. She wouldn't say it but at the end of the meeting it was decided I didn't need to have a nurse come over to show me how to do PT. What is your conclusion? Mine was I just saved the insurance company a nice sum of money for a service that is questionable to say the least.
if it made you feel good on any level, physically or mentally I say GO FOR IT. The cartoon clip is hilarious !!! many times we have in been in situations seeking medical treatment that you feel you are in that cartoon moment.
Found this online today, if it is on the internet it must be true.
Exercise for PALS
The effects of exercise in PALS are not well understood, and the role of resistance and aerobic exercise, and fitness in general, for those with ALS does continue to be controversial. The role of exercise in ALS has been the subject of much animal and human research. Many PALS ask about exercise, and exercise may have been central to the individual’s pre-ALS life. It is becoming recognized that exercise plays a very important role in health and wellbeing for many populations, including those with other neurodegenerative diseases such as Parkinson’s disease, Huntington’s disease, and multiple sclerosis. Physical therapists, with their education and training,…